AS SEEN ON
I am a passionate patient advocate and paid speaker, I have loved getting out and sharing my story across multiple platforms and many different places across the country. I have had many opportunities to represent the PAH and CHF community in spaces that we otherwise would not be represented in. It has been the joy of my life to serve this community and give a voice to this disease.
2023 Advocacy Trailblazer
This category celebrates patients and caregivers who push the limits and pave a new path for others despite managing a health condition.
Health Union and Social Health Network awarded me the
2023 Advocacy Trailblazer award for my work and leadership in the health advocacy space.
Publications
Publications I can be found in include:
Health Union
Social Health Network
Pulmonary Hypertension News
Pulmonary Hypertension Association
American Lung Association
Health Monitor Magazine
SELF Magazine
Chronic Disease Coalition
DigiPharma Connect EAST
HealtheVoices
Love What Matters
RARE. Podcast
ImAwareThatImRare, PH Aware Podcast
InvisiYouth Chat Sessions Podcast
Invisible Wave Podcast
Born Different
Truly Show
#Paintudes
Rare Disease Day
Chronic Disease Day
R is for Rare Podcast
Because We Are Strong Podcast
REAL Talk Conference
The Insighters
RareDisease.net
Fight Like A Warrior
Other Noteable Things
Patient Rising 2023 Legislative Advocacy Masterclass Student
Patient Leadership Certified by Social Health Network
2024 Social Health Network Patient Leadership Council Member
Team PHenomenal Hope Partner
PCORI Advisory Council Patient Reviewer
Chronic Disease Coalition Ambassador
DigiPharma Connect Speaker
Multiple, Different Patient Panel Panelist
Pulmonary Hypertension Association Panelist
iPain Conference Speaker
HealtheVoices Main Stage Speaker
HealtheVoices Breakout Session Leader
HealtheVoices Patient Advocacy Board Member
Insighter
